We are here at the the clinic getting my antibiotics for the fever I had yesterday. I was up with fevers of 103.5F and 102.0F last night that wore me out. I feel lots better today since my temp is back down to the normal range. My platelets are low again at 6000 so the nurse is hanging a platelet pack as we speak.
I met with Tanya Helms, the Physician Assistant for my doctor to go over the donor typing for my sisters. They are a perfect match to each other but not to me. (The chances are 1 in 4 for a sibling match). However, they have identified 5 donors in the registry who match my profile. Over the next month, they will contact those 5 donors, ask them to be re-tested, and determine who could be lined up for the transplant in the time frame we will need.
Right now the transplant feels so far off since I am barely keeping my own with the fever I had yesterday. My weight was better yesterday (up to 117#) but today I am back down to 114#. When I have a bad night or bad day, I seem to slip since I can't keep anything down.
I woke from my benadryl haze at one point to see Ms. Karen Pieper seated near my recliner. What a long time it's been! She works in another part of this building and I guess she knew I was here. It was so good to see her and hear about her Brazil trip, her family, and all the great dog stories (she keeps the dogs for one of the Cardiology fellows who has some kind of small dog called a Havanese). I'll have to look them up because I've never heard of them.
The most beautiful pair of goldfinches were at the feeder this morning. The male was brilliant yellow and the female just a touch less so. They were so delightful to watch while I ate my breakfast.
5 comments:
I'm glad to hear you are feeling better AND that you have 5 matches in the donor database.
When my stomach is unsettled, I find the Tazo Zen tea to be soothing. It is a green tea with additional herbs. Is it okay for you to drink green tea? If so, I'll plan to bring you Zen tea bags to try.
The five house wren eggs hatched yesterday. The baby wrens are so tiny, about the size of a dime. Momma wren has a fit when I check the nest.
This morning Deb spied a baby bunny chewing on her bean plants and a big bunny, we presume mom, pruning the eggplant. Deb gave a big sigh and said "well, I guess I won't be eating many of those beans!".
Love, Marty
Any word on your cultures? Pretty high fevers---isn't it a breakthrough that they let you handle it from home? I remember even a few years ago in residency it was a direct admit for FUO in a neutropenic patient!
Had lunch with Mimsy today-she sent the books so you should get them soon.
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Marty--Teresa would like to try the tea, thanks.
Shannon--the cultures were negative as of today. Teresa got Susan's terrific package. She's going to start reading the Dave Barry book first! The jewelry is lovely.
Looks like we'll be at Duke tomorrow from 10:15a-3p or so (takes about 5h). Sunday will likely be similar. It takes a while to administer those antibiotics--but they sure help.
TGIF all-Holly
Just wanted to let you both know you are in our thoughts and prayers every day.I have also told the bees and they are sending good buzzing energy your way. Big hugs.
More later,
LOVE,
Karen
Now that I have bee energy behind me, it's all up from here!!! tree
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