So this is the first blog entry from home. I got home yesterday about 4pm and it was heavenly. I had good energy and even an appetite for the Kashi pizza my mom had bought for us. I did have trouble getting to sleep since my schedule had gotten later and later at the hospital. When they come in at 12 noon, 4p, 8p, 12 midnight, and 4 am to get you up, weigh you, draw blood, and measure all of your vitals, it's hard to have a regular bedtime schedule. So last night I went to bed at 12 mdnt but couldn't get to sleep. I read some, wrote thank you notes, looked through several bike shop websites to peruse the bicycles, and eventually crawled back into bed at 2am. I woke up with horrible nausea and queasiness at 4:22am when the nausea meds ran out. So the lesson of the day is to stay on top of the nausea while I'm here at home. I'll take the pills regardless of how I feel. That should help alot.
As I was lying in bed trying to fall asleep I realized that this situation is very different from the breast cancer chemo. I haven't been around this corner to know what to expect. So I have to be gentle with myself not to do too much, to eat better, to be extra fastidious about hand washing and avoiding germs. Those 92 measly white blood cells won't do much to protect me against the big dirty world out there.
Tomorrow I will head back to the outpt clinic to have my counts drawn, get blood cells and platelets if I need them and to be examined. It was so nice of them to give me a reprieve today. After being in Duke hospital for 7 days, I am ready to see some normal life stuff for a change.
My mom just left to head back South to Charleston. She was so helpful being here-cooking, cleaning, grocery shopping, even got us a new dishwasher since the old one went on the blink. She is such a delight to be with these days, now that we relate as adults and now that she has given up drinking for good.
Well if we have the energy today we are going to look at women's mtn bikes. My birthday is a little over a month off so I want to get myself a special treat. It's time.
Hope everyone enjoys the weekend as much as I will and check back with us here. Warm wishes to you all, tree
4 comments:
Hi Tree!
I am so proud of you! I wish you a great weekend!
Big hug, ALEX
Hey Tree.
Glad to know you're home again and that Holly and your mom are taking such good care of you. Hope your counts are better today and that you continue to have good energy.
I have some books to deliver to you when you're up for it -- possibly on Sunday, depending on how you're feeling.
We're thinking of you and sending good energy.
Love,
Angela
Enjoy being home and soak up the energy of your Mom and Holly and all the events with friends and family that have taken place in your Hillsborough home.
Love, Julia
oh, oh, a new BIKE. What fun! I think the Santa Cruz Juliana like Sandi has is a fabulous women's mountain bike. Sandi even let me ride it briefly in the cul-de-sac once. Even though her frame is too small for me, it was a really sweet ride.
I'll go riding with you if you stick to old road beds, but I'm not riding single track. lol. Mountain biking scares me.
Big Hug - Marty
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