Yesterday when I got to clinic, they let me know that they were dropping one of my abx. Yippee! It was the one I'd been on for 23 days, and it always took 2 hrs for me to get it infused in the clinic. I am still on three other anti-infectives---two are abx and one is an anti-fungal. However, now I take all of them at home, including the one I give myself with the little battery operated pump 4x a day. It hooks up to my catheter and infuses over 30 mins. I try to take it at 5a, 11a, 5p and 11p. Sometimes I get off schedule by an hr one way or another, but I know that it is okay as long as I get all 4 doses each day.
The best news I got yesterday is that if I continue to do well, they may let me start attending clinic just on Mon-Wed-Fri. A second Yippee! Maybe we can even sneak a little get away to the beach in sometime soon.
This photo is one Holly took this morning. Her sister sent me the T shirt. It has some choice words for leukemia.
Labs looked good yesterday. I am feeling more energetic and less nauseated today. Seems like a good one. You have a good one too!
3 comments:
Love the shirt! It does seem a little aggressive for you, but I love the message! I would wear it every day. I'm so glad you are feeling better and may get to reduce the clinic time.
Love,
beth
WOOO HOOO! Glad to hear you are doing better on several fronts. If anyone asks, you could just say the T-shirt displays the word verification characters necessary to post to the blog.
Laurie's back home and napping after her red eye flight from Alaska. We hope to see you and Holly and Quig soon.
Take care, Julia
I love the t-shirt and your sisters sense of humor!
Today we are taking the boys on the green river. No, not to paddle, but to do the hike that runs along it down in Saluda where all the crazy whitewater is! Tomorrow I am going to Dr. Blair's tribute---the mayor will give a proclamation among other community leaders to thank him for his endeavors in this community. His lung cancer is holding steady with chemo but he's moving to Mississippi for his final days very soon.
Can't wait to tell you about the latest infectious disease running through the kids. Too gross to blog. : )
Let me know if you'll be around next Friday/Saturday so I can find a time to come by and visit on my way to Cary for the NCAFP meeting.
Shannon
shannon
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