I felt pretty good yesterday morning and even took a nice 45 min walk before we had to go to clinic. But in the afternoon I started having bodyaches again, especially in my upper shoulders and neck. Then I developed a sort of fever of 100.1 and felt very tired and chilled. They have changed some of my medicines again so I don't know if it has anything to do with that or not. Last night we watched a movie (Definitely, Maybe) and then went to bed. I had to take my last infusion of the imipenem in the bedroom makeshift infusion center (that is one of the new meds that they are having me take. I have to give it to myself using this small battery powered pump 4x per day). I told Holly that I'd been feeling rough since I got home from the clinic. I had the almost fever, bodyaches, feeling weak and blah.
Seems like every medicine they add (in the past 2 days they have added 3 new meds and dropped 2 old ones) upsets my stomach and makes me feel like I am back on chemo. The abx aren't as bad to my stomach as the full fledged chemo, of course, but they are certainly making me nauseated. I am so tired of feeling weak and nauseated. Really. They could stop now.
Anyway, as you can tell I feel somewhat exasperated. I never felt this bad for this long with the breast cancer treatments, so this go round is definitely more challenging-physically and emotionally. Well I am doing my best. Luckily I have Holly to smoothe my brow when I hurt and to encourage me when I am down.
More later if I have new news...taf
5 comments:
Hey, Tree, I just want to give you a big old hug and make it all go away! I am so sorry that you feel like crap. I am sending you all manner of positive thoughts, magic dust, and Golden Retriever energy and joy and wishing you a day of peace, rest, and smiles! Love, Julia
1+ on the no more nausea thing.
I'm channeling stability, solidity, concreteness. The world is a steady steady steady place. All of our stomachs are very settled.
Is it helping?
Hope so, but if not, at least know I'm thinking of you. Hope today goes better.
Dear Tree.
I hope you're feeling better. I also hope the new meds decrease your body aches and fever once they have a chance to kick in.
You're on a long road and walking the hardest part of it right now. But, just as you did with breast cancer, you will reach the end and all of this nausea and aching will be behind you.
Today I'm sending you strength and encouragement and hoping that your stomach has settled down.
I'm also feeling very glad about Locopops being near your house, since they almost always help the kids' nausea.
Hang in there and know we're all thinking of you and sending you strength.
Love,
Angela
Tree, I forgot to mention that I wore an Arthurs Pass NP, New Zealand T-shirt yesterday in your honor. Just forseeing your visit there. I would also like to visit NZ. Laurie has been there, as has her sister Chris, who gave me the T-shirt (a kia flying in the foreground, snow-covered, rugged peaks in the background).
Hope you have a great day.
--Julia
Oh thanks for including me on the NZ thought plane. I can finally see some light at the end of the tunnel and imagine that again.-taf
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