Sunday, July 6, 2008
Feeling Cruddy
It has been a busy w-e with lots of fun visitors from Asheville. Billie came on Friday to stay for 2 days and then Susan& Donna arrived Saturday. Billie made us a splendid meal of veggie pie, squash soup, and from her mom a sweet dairy pie. Kind of a turle pie with whipped cream, nuts, coconut, and caramel. She also brought a growler of the Wee Heavier beer from one of our favorite breweries in Asheville. Of course everyone partook of that except for me. Susan & Donna brought a chicken and spinach lasagne. Holly cooked green beans to round out the veggie quotient for me. It's tough to get enough fiber and micronutrients when you can't eat fresh fruits and vegetables. But I can eat anything cooked, and I love green stuff cooked. It was so good to see the pals from Asheville. Made me feel a little closer to the mtns and our Asheville home.
This is my fourth day of feeling really cruddy. I can barely stand the acheyness in my body as the long bones make blood products again and pump out growth factors. When I used one of the meds before to stimulate neutrophils (when I was having breast cancer treatment), it felt very similar. Only that time it lasted one day and then got better. This just persists and it get really bad at night when I am trying to sleep. It also seems to be associated with fevers that drain what little energy I do have left. So I am feeling very washed out, weak, and achey all at once. I haven't been able to exercise for several days, preferring to sleep for a 1 hr nap during the time I was walking previously. I know that this won't last forever, but I am tired of it already. I'm ready to feel good again and be able to eat normally (it's hard to eat when I am this weak).
I guess the good news I got today is that my platelets are back up to 100, 000 having doubled each of the last 2 days. My HgB is 9.4 today (yesterday 9.7), and my white cell count is still 0.4. I wish the white cell count would start to increase because I will have to be on abx every day until my neutrophil count (which is 0 currently) is up to 500. So I will keep visualizing neutrophils if you will.
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1 comment:
Tree, I'm sorry you're feeling cruddy. I googled neutrophils so I could visualize them too. What's the best online resource you've found for neutrophils and AML?
Hope you have a good day with visions of a fun ride on your mountain bike!
--Julia
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